Commitment to Privacy
Since our establishment in 1986, the Histiocytosis Association has been dedicated to preserving the confidentiality of the personal information of our donors and members. To demonstrate the importance of your privacy, the Histiocytosis Association has established this policy outlining our usage of any personal information collected by our organization.
Collection of Information
The Histiocytosis Association collects personal data via our online "information request" forms, over the phone, and/or by written request; it may include name, address, phone number and email address. In some cases, information regarding a patient may be collected, such as patient name, date of birth, diagnosis, date of diagnosis and the relationship to that patient. Physicians or other medical personnel may be asked to supply information regarding their institution of employment. In the case where someone is making a contribution, payment information (i.e. credit card data) will be collected.
Use of Information
The Histiocytosis Association does not sell, rent or distribute donor, member or personal information to any for-profit or nonprofit organization. This practice is automatically applied and, thus, it is not necessary for you to contact us in order to make this request. Access to all personal information is restricted to only those employees and volunteers who need it to provide our services to you.
Online security and privacy are of the utmost importance to the Histiocytosis Association. Therefore, we work with our online system service provider, Blackbaud®
, to ensure that our online data collection process is safe and secure. To prevent unauthorized access, maintain data accuracy and ensure the correct use of information, we have put in place appropriate physical, electronic and managerial procedures to safeguard and secure the information we collect online.
Conflicts of Interest Policy
It is recognized that occasions may arise when a member of the Board or an officer of the Corporation has a financial interest or has a familial relationship with a person who has a financial interest in a contract or transaction involving the Corporation or a committee thereof. In such cases it is the policy of the Corporation and of its Board that:
(a) Any material facts as to such financial interest shall be disclosed by such interested Trustee or officer to the members of the Board or committee.
(b) The Trustee or officer having such financial interest in any matter shall not vote or use any personal influence with regard to the matter (except that he or she may state a position on the matter and respond to questions about it); however, such interested Trustee or officer may be counted in determining the quorum for the meeting at which the matter is voted upon. The minutes of the meeting shall reflect that the disclosure was made and that such Trustee or officer abstained from voting. At the Board’s discretion, the interested Trustee(s) or officer(s) shall leave the room during discussion and voting on the matter(s) subject to the conflict of interest.
Should you have any questions/comments regarding our Privacy or Conflicts of Interest Policies, please contact us at
Effective Date: July 21, 2006; reviewed and updated annually.