Information for Donors

A Critical Purpose

Since it was founded in 1986, the Histiocytosis Association has worked efficiently and effectively to provide vital services for patients, families, physicians and scientists fighting histiocytic disorders. With the support of a small, highly dedicated staff and a corps of skilled volunteers, the Association is able to fund clinical trials and research initiatives, host national and regional conferences, and provide invaluable information to patients, their families and physicians.

It is important to note that because histiocytic disorders affect such a small percentage of the population, these diseases do not generate significant government-supported research. The Association must rely solely on contributions from corporations, foundations and individual donors to fund critical research, build awareness and implement essential outreach initiatives.

The Cycle of Service

The Histiocytosis Association is committed to getting the greatest possible benefit from every dollar donated and every effort undertaken. Our service model ensures that the Association’s programs and services are working in tandem – strategically building upon one another to support the search for a cure and the patients fighting these diseases today.

“The Cycle” illustrates how each aspect of our work leads to and sustains the next, creating a continuous succession of effective investment and reinvestment. Each of the five components in “The Cycle” is crucial to the success of the others and to the overall success of creating a world free of histiocytic disorders.

Charity Navigator 4-Star Award

The Histiocytosis Association is proud to have once again achieved a four-star rating from Charity Navigator, America’s largest and most-utilized independent evaluator of charities, for sound fiscal management and commitment to accountability and transparency.

In his award letter to the Association, Charity Navigator President and CEO Ken Berger stated, “Only 17% of the charities we rate have received at least two consecutive 4-star evaluations, indicating that Histiocytosis Association outperforms most other charities in America. This ‘exceptional’ designation from Charity Navigator differentiates Histiocytosis Association from its peers and demonstrates to the public it is worthy of their trust.”
The Association’s complete evaluation can be seen on Charity Navigator's website.

The Association has also earned the GuideStar Exchange Seal for commitment to transparency. GuideStar’s mission is to revolutionize philanthropy and nonprofit practice by providing information that advances transparency, enables users to make better decisions, and encourages charitable giving.

Learn about Charity Navigator and its Rating System

Financial Statements

The Histiocytosis Association is recognized as a tax-exempt organization under section 501(c)3 of the Internal Revenue Code, Federal Tax ID number 22-2827069.

The Association’s most recent financial statements and documents can be viewed by clicking on the following links:

2011 Form 990

2011 Independent Financial Audit