A Critical Purpose
Since it was founded in 1986, the Histiocytosis Association has worked efficiently and effectively to provide vital services for patients, families, physicians and scientists fighting histiocytic disorders. With the support of a small, highly dedicated staff and a corps of skilled volunteers, the Association is able to fund clinical trials and research initiatives, host national and regional conferences, and provide invaluable information to patients, their families and physicians.
It is important to note that because histiocytic disorders affect such a small percentage of the population, these diseases do not generate significant government-supported research. The Association must rely solely on contributions from corporations, foundations and individual donors to fund critical research, build awareness and implement essential outreach initiatives.
The Cycle of Service
The Histiocytosis Association is committed to getting the greatest possible benefit from every dollar donated and every effort undertaken. Our service model ensures that the Association’s programs and services are working in tandem – strategically building upon one another to support the search for a cure and the patients fighting these diseases today.
“The Cycle” illustrates how each aspect of our work leads to and sustains the next, creating a continuous succession of effective investment and reinvestment. Each of the five components in “The Cycle” is crucial to the success of the others and to the overall success of creating a world free of histiocytic disorders.
Download the 2013 Annual Report
The Histiocytosis Association is recognized as a tax-exempt organization under section 501(c)3 of the Internal Revenue Code, Federal Tax ID number 22-2827069.
The Association’s most recent financial statements and documents can be viewed by clicking on the following links:
2013 IRS Form 990
2013 Independent Financial Audit
Income and Expenses Overview
Based on the Fiscal Year ending December 31, 2013
Sources of Income
Distribution of Expenses
Previous Financial Statements
2012:2012 IRS Form 9902012 Independent Financial Audit2011:
2011 IRS Form 9902011 Independent Financial Audit
The Association is a silver-level GuideStar Exchange participant, demonstrating its for commitment to transparency. GuideStar’s mission is to revolutionize philanthropy and nonprofit practice by providing information that advances transparency, enables users to make better decisions, and encourages charitable giving.
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