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Erdheim-Chester disease - Google News
The power of faith - Lakewood Sentinel

The power of faith
Lakewood Sentinel
“I've always been religious,” said Gallick, who has Erdheim-Chester disease, an ultrarare blood disease that affects nearly 1,000 people worldwide. “My faith is like my anchor, my core center of strength, because when you lose all you have that's ...


Thursday, June 30, 2016 11:54:05 AM

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

DeRidder supports objectives of Rare Disease Day - Beauregard Daily News

Beauregard Daily News

DeRidder supports objectives of Rare Disease Day
Beauregard Daily News
Erdheim-Chester Disease is one of 7,000 rare diseases supported by proclamation. DeRidder supports its local rare disease nonprofit, the Erdheim-Chester Disease (ECD) Global Alliance this upcoming Rare Disease Day. Mayor Ron Roberts officially ...


Saturday, February 27, 2016 12:37:16 PM

Mike Livings, son of Vero Beach coaching legend, dies - TCPalm

TCPalm

Mike Livings, son of Vero Beach coaching legend, dies
TCPalm
Mike Livings suffered from Erdheim-Chester disease, which caused kidney failure for him. Rosemarie Livings said her son was one of about 300 people worldwide with the disease when he was diagnosed nearly 10 years ago. "It breaks my heart what the ...
Jeff Davis loses another legend


Monday, April 25, 2016 6:40:35 PM

Stafford student has high-flying day at base - Fredericksburg.com

Fredericksburg.com

Stafford student has high-flying day at base
Fredericksburg.com
On Mother's Day, he was diagnosed with Erdheim–Chester disease, which is tracked by the National Organization for Rare Disorders. The disease is characterized by excessive production of white blood cells that normally protect the immune system.


Saturday, February 06, 2016 12:03:28 AM

Erdheim-Chester Disease: MR Imaging, Anatomic, and Histopathologic Correlation of Orbital Involvement - AJNR (subscription)

Erdheim-Chester Disease: MR Imaging, Anatomic, and Histopathologic Correlation of Orbital Involvement
AJNR (subscription)
Address correspondence to Christine B. Chung, MD, Department of Radiology, University of California, San Diego, and Veterans' Administration Health Care System, 3350 La Village Dr., La Jolla, CA 92161 ...


Sunday, April 18, 2004 1:56:35 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

They Served with Honor: Bob Rodgers, Mason City - Mason City Globe Gazette

Mason City Globe Gazette

They Served with Honor: Bob Rodgers, Mason City
Mason City Globe Gazette
Now, Bob and Phyllis are heavily involved in The Erdheim-Chester Disease Global Alliance. Researchers may classify Erdheim-Chester as a cancer of the blood, which would be a good thing for Bob since he could possibly link it to exposure to Agent Orange ...


Sunday, January 03, 2016 7:01:49 AM

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer - Popular Mechanics

Popular Mechanics

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer
Popular Mechanics
After fifteen years of suffering from intractable bone pain, Porterfield was diagnosed with a rare disease called Erdheim-Chester, for which there are no FDA-approved treatments. By 2013 she was so ill that she couldn't walk. Her doctor gave her only a ...


Friday, October 16, 2015 12:25:24 PM

Three Compelling Cancer Advances from 2015 - Memorial Sloan Kettering Cancer Center (blog)

Memorial Sloan Kettering Cancer Center (blog)

Three Compelling Cancer Advances from 2015
Memorial Sloan Kettering Cancer Center (blog)
A team led by Cancer Biology & Genetics Program Chair Scott Lowe confirmed that APC mutations spur the progression of the disease at later stages, suggesting that the gene may be a promising target for future drugs. They also demonstrated that ...


Tuesday, December 29, 2015 3:32:28 PM

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