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Erdheim-Chester disease - Google News
The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

Mike Livings, son of Vero Beach coaching legend, dies - TCPalm

TCPalm

Mike Livings, son of Vero Beach coaching legend, dies
TCPalm
Mike Livings suffered from Erdheim-Chester disease, which caused kidney failure for him. Rosemarie Livings said her son was one of about 300 people worldwide with the disease when he was diagnosed nearly 10 years ago. "It breaks my heart what the ...
Jeff Davis loses another legend


Monday, April 25, 2016 6:40:35 PM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

The power of faith - Arvada Press

Arvada Press

The power of faith
Arvada Press
“I've always been religious,” said Gallick, who has Erdheim-Chester disease, an ultrarare blood disease that affects nearly 1,000 people worldwide. “My faith is like my anchor, my core center of strength, because when you lose all you have that's ...


Monday, June 27, 2016 7:11:55 PM

Laurence Reisman: Mike Livings was educator, coach and most of all, dad - TCPalm

TCPalm

Laurence Reisman: Mike Livings was educator, coach and most of all, dad
TCPalm
It was the kind of tenacity that helped Mike Livings survive for almost a decade with Erdheim-Chester, a rare, often-fatal disease that leads to organ destruction. Livings, 57, a longtime Indian River County educator, coach and son of legendary Vero ...


Wednesday, April 27, 2016 10:35:28 AM

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition - Cancer Network

Medscape

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition
Cancer Network
Of the patients with either Erdheim–Chester disease or Langerhans'-cell histiocytosis, the response rate was 43%—one complete response and five partial responses. There were also anecdotal responses among other BRAF-mutated cancers, including ...
BRAF May Be a Good 'Target' in Nonmelanoma Cancers
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
New Kind of Cancer Study Finds New Targets for Tailored Treatments
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Wednesday, August 19, 2015 5:51:35 PM

'Basket' Cancer Trial Hints at Promise - MedPage Today

MedPage Today

'Basket' Cancer Trial Hints at Promise
MedPage Today
... for melanoma demonstrated modest antitumor activity in nonmelanoma cancers that sporadically express the BRAF V600 mutation, the best results being in non-small cell lung cancer (NSCLC), Erdheim-Chester disease, and Langerhans-cell histiocytosis, ...


Wednesday, August 26, 2015 2:31:19 PM

'Basket study': Clinical trial design explores responses to drugs based on specific mutations in patients' tumors - Science Daily

'Basket study': Clinical trial design explores responses to drugs based on specific mutations in patients' tumors
Science Daily
People with lung, colorectal, and ovarian cancers were among those included in the study as well as people with rare diseases, such as Erdheim-Chester disease. Until this point, the efficacy of vemurafenib in nonmelanoma cancers has remained unexplored ...


Friday, August 21, 2015 5:33:04 PM

Vemurafenib in multiple nonmelanoma cancers with BRAF V600 mutations - Pharmacy Today, American Pharmacists Association, pharmacist.com

Vemurafenib in multiple nonmelanoma cancers with BRAF V600 mutations
Pharmacy Today, American Pharmacists Association, pharmacist.com
The response rate in the cohort with Erdheim–Chester disease or Langerhans'-cell histiocytosis was 43%, and no patients had disease progression during treatment. The most common adverse events among individuals receiving vemurafenib monotherapy ...


Thursday, August 20, 2015 9:05:35 AM

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