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Erdheim-Chester disease - Google News
The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

ON THE WATER: Race Week Winners Float Proud - Gazette Newspapers

Gazette Newspapers

ON THE WATER: Race Week Winners Float Proud
Gazette Newspapers
Ray, who has Erdheim-Chester Disease, was deemed alright and the crew pressed on, cutting away the rig and powering back to LBYC, where they were in good spirits. Ray's condition is terminal. He maintains that any day on the water is a good day — even ...


Friday, July 03, 2015 4:36:26 AM

Long Beach Race Week: It's Not Always Like This - Scuttlebutt Sailing News

Scuttlebutt Sailing News

Long Beach Race Week: It's Not Always Like This
Scuttlebutt Sailing News
The mast buckled roughly eight-feet off the deck, and fell. Crew member Erik Ray was pinned beneath the detritus, and wriggled his way out. Ray, who suffers from Erdheim-Chester Disease, was deemed okay, and the crew pressed on, cutting away the rig.


Sunday, June 28, 2015 9:33:07 AM

A Faster Way to Try Many Drugs on Many Cancers - New York Times

New York Times

A Faster Way to Try Many Drugs on Many Cancers
New York Times
Eighteen patients had one of two very rare cancers, Erdheim-Chester disease or Langerhans disease, the cancer that struck Mrs. Hurwitz. Of them, 14 responded to the melanoma drug — their tumors vanished, shrank or stopped growing — and the remaining ...


Wednesday, February 25, 2015 11:33:34 PM

At Workshop, Labs Tell FDA to Let them Tweak LDTs; Give Their Take on Labeling ... - GenomeWeb

At Workshop, Labs Tell FDA to Let them Tweak LDTs; Give Their Take on Labeling ...
GenomeWeb
Meanwhile, Aisner offered the example of a patient suffering from Erdheim-Chester Disease (ECD), a condition where the body overproduces infection fighting cells and causes organ failure in the absence of treatment. Her lab at CU decided to test for ...


Friday, January 09, 2015 10:04:21 AM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

Personnel File - Alexandria Town Talk

Alexandria Town Talk

Personnel File
Alexandria Town Talk
After she lost her husband in 2007 to the extremely rare Erdheim-Chester Disease, Brewer founded the Erdheim-Chester Disease Global Alliance, which now has about 500 members from 27 different countries. The organization's mission is to raise ...


Friday, March 27, 2015 5:39:55 PM

Trovagene's Urinary ctDNA Assay Outperforms Tissue Biopsy in Clinical Study ... - PR Newswire (press release)

Trovagene's Urinary ctDNA Assay Outperforms Tissue Biopsy in Clinical Study ...
PR Newswire (press release)
While lung cancer is one of the most aggressive malignancies, progress has been made in the advancement of therapeutic strategies against the disease. In particular, epidermal growth factor receptor tyrosine kinase inhibitors (EGFR-TKIs), such as ...


Friday, April 17, 2015 10:32:37 AM

Trovagene, Inc. Reports Fourth Quarter and Full Year 2014 Financial Results - PR Newswire (press release)

Trovagene, Inc. Reports Fourth Quarter and Full Year 2014 Financial Results
PR Newswire (press release)
For the year ended December 31, 2014, Trovagene reported a net loss of $14.3 million or $0.76 per share, as compared to a net loss of $11.8 million, or $0.70 per share, for the twelve months ended December 31, 2013. The change in net loss is due ...


Thursday, March 12, 2015 4:07:02 PM

NCI CTEP-Approved Trials for the Month of November - The Cancer Letter Publications

NCI CTEP-Approved Trials for the Month of November
The Cancer Letter Publications
9598: A Phase II Therapeutic Trial of the Use of Dabrafenib and Trametinib in Patients with BRAF V600E Mutation Positive Lesions in Erdheim Chester Disease. National Institutes of Health; Estrada-Veras, Juvianee Ibrahim. (301) 594-2952. 9653: Phase II ...


Monday, December 01, 2014 7:31:31 PM

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