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Erdheim-Chester disease - Google News
Mike Livings, son of Vero Beach coaching legend, dies - TCPalm

TCPalm

Mike Livings, son of Vero Beach coaching legend, dies
TCPalm
Mike Livings suffered from Erdheim-Chester disease, which caused kidney failure for him. Rosemarie Livings said her son was one of about 300 people worldwide with the disease when he was diagnosed nearly 10 years ago. "It breaks my heart what the ...
Jeff Davis loses another legend


Monday, April 25, 2016 6:40:35 PM

Opinion column: Laurence Reisman: Livings was an educator, coach, but most of all, dad - TCPalm

TCPalm

Opinion column: Laurence Reisman: Livings was an educator, coach, but most of all, dad
TCPalm
It was the kind of tenacity that helped Mike Livings survive for almost a decade with Erdheim-Chester, a rare, often-fatal disease that leads to organ destruction. Livings, 57, a longtime Indian River County educator, coach and son of legendary Vero ...


Tuesday, April 26, 2016 7:53:50 PM

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

DeRidder supports objectives of Rare Disease Day - Beauregard Daily News

Beauregard Daily News

DeRidder supports objectives of Rare Disease Day
Beauregard Daily News
Erdheim-Chester Disease is one of 7,000 rare diseases supported by proclamation. DeRidder supports its local rare disease nonprofit, the Erdheim-Chester Disease (ECD) Global Alliance this upcoming Rare Disease Day. Mayor Ron Roberts officially ...


Saturday, February 27, 2016 1:12:07 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

Three Compelling Cancer Advances from 2015 - Memorial Sloan Kettering Cancer Center (blog)

Memorial Sloan Kettering Cancer Center (blog)

Three Compelling Cancer Advances from 2015
Memorial Sloan Kettering Cancer Center (blog)
In 2015, Memorial Sloan Kettering's scientists continued to lead the way in clarifying the factors that trigger or promote cancer and in identifying new treatment strategies for the disease. Here's a recap of some of the most compelling work from the ...


Tuesday, December 29, 2015 3:32:28 PM

New Kind of Cancer Study Finds New Targets for Tailored Treatments - NBCNews.com

NBCNews.com

New Kind of Cancer Study Finds New Targets for Tailored Treatments
NBCNews.com
It's called Erdheim-Chester disease, a very rare disorder in which the immune system produces excess quantities of cells called histiocytes. These cells damage the brain, kidneys and other organs. Half of Erdheim-Chester patients have the BRAF mutation.
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
BRAF May Be a Good 'Target' in Nonmelanoma Cancers
First trial targeting mutation, not cancer type, gives mixed results
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Wednesday, August 19, 2015 5:23:16 PM

Stafford student has high-flying day at base - Fredericksburg.com

Fredericksburg.com

Stafford student has high-flying day at base
Fredericksburg.com
On Mother's Day, he was diagnosed with ErdheimChester disease, which is tracked by the National Organization for Rare Disorders. The disease is characterized by excessive production of white blood cells that normally protect the immune system.


Saturday, February 06, 2016 12:03:28 AM

They Served with Honor: Bob Rodgers, Mason City - Mason City Globe Gazette

Mason City Globe Gazette

They Served with Honor: Bob Rodgers, Mason City
Mason City Globe Gazette
Now, Bob and Phyllis are heavily involved in The Erdheim-Chester Disease Global Alliance. Researchers may classify Erdheim-Chester as a cancer of the blood, which would be a good thing for Bob since he could possibly link it to exposure to Agent Orange ...


Sunday, January 03, 2016 7:01:49 AM

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer - Popular Mechanics

Popular Mechanics

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer
Popular Mechanics
After fifteen years of suffering from intractable bone pain, Porterfield was diagnosed with a rare disease called Erdheim-Chester, for which there are no FDA-approved treatments. By 2013 she was so ill that she couldn't walk. Her doctor gave her only a ...


Friday, October 16, 2015 12:25:24 PM

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