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Erdheim-Chester disease - Google News
The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

DeRidder supports objectives of Rare Disease Day - Beauregard Daily News

Beauregard Daily News

DeRidder supports objectives of Rare Disease Day
Beauregard Daily News
Erdheim-Chester Disease is one of 7,000 rare diseases supported by proclamation. DeRidder supports its local rare disease nonprofit, the Erdheim-Chester Disease (ECD) Global Alliance this upcoming Rare Disease Day. Mayor Ron Roberts officially ...


Saturday, February 27, 2016 12:37:16 PM

Jeff Davis loses another legend - Montgomery Advertiser

Montgomery Advertiser

Jeff Davis loses another legend
Montgomery Advertiser
Jeff Davis sports are synonymous with the Livings family. Saturday delivered sad news for Volunteer fans. Former Jeff Davis football and basketball star Mike Livings died on Saturday after a 10-year battle with Erdheim-Chester Disease (ECD), an ...
Mike Livings, son of Vero Beach coaching legend, dies


Tuesday, April 26, 2016 12:51:08 AM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

New Kind of Cancer Study Finds New Targets for Tailored Treatments - NBCNews.com

NBCNews.com

New Kind of Cancer Study Finds New Targets for Tailored Treatments
NBCNews.com
It's called Erdheim-Chester disease, a very rare disorder in which the immune system produces excess quantities of cells called histiocytes. These cells damage the brain, kidneys and other organs. Half of Erdheim-Chester patients have the BRAF mutation.
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
BRAF May Be a Good 'Target' in Nonmelanoma Cancers
Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition
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Wednesday, August 19, 2015 5:23:16 PM

They Served with Honor: Bob Rodgers, Mason City - Mason City Globe Gazette

Mason City Globe Gazette

They Served with Honor: Bob Rodgers, Mason City
Mason City Globe Gazette
Now, Bob and Phyllis are heavily involved in The Erdheim-Chester Disease Global Alliance. Researchers may classify Erdheim-Chester as a cancer of the blood, which would be a good thing for Bob since he could possibly link it to exposure to Agent Orange ...


Sunday, January 03, 2016 7:01:49 AM

Stafford student has high-flying day at base - Fredericksburg.com

Fredericksburg.com

Stafford student has high-flying day at base
Fredericksburg.com
On Mother's Day, he was diagnosed with ErdheimChester disease, which is tracked by the National Organization for Rare Disorders. The disease is characterized by excessive production of white blood cells that normally protect the immune system.


Saturday, February 06, 2016 12:03:28 AM

Three Compelling Cancer Advances from 2015 - Memorial Sloan Kettering Cancer Center (blog)

Memorial Sloan Kettering Cancer Center (blog)

Three Compelling Cancer Advances from 2015
Memorial Sloan Kettering Cancer Center (blog)
A team led by Cancer Biology & Genetics Program Chair Scott Lowe confirmed that APC mutations spur the progression of the disease at later stages, suggesting that the gene may be a promising target for future drugs. They also demonstrated that ...


Tuesday, December 29, 2015 3:32:28 PM

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer - Popular Mechanics

Popular Mechanics

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer
Popular Mechanics
After fifteen years of suffering from intractable bone pain, Porterfield was diagnosed with a rare disease called Erdheim-Chester, for which there are no FDA-approved treatments. By 2013 she was so ill that she couldn't walk. Her doctor gave her only a ...


Friday, October 16, 2015 12:25:24 PM

Laurence Reisman: Mike Livings was educator, coach and most of all, dad - TCPalm

TCPalm

Laurence Reisman: Mike Livings was educator, coach and most of all, dad
TCPalm
It was the kind of tenacity that helped Mike Livings survive for almost a decade with Erdheim-Chester, a rare, often-fatal disease that leads to organ destruction. Livings, 57, a longtime Indian River County educator, coach and son of legendary Vero ...


Wednesday, April 27, 2016 10:35:28 AM

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