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Erdheim-Chester disease - Google News
Turkish university to set up a center for rare diseases - Hurriyet Daily News

Hurriyet Daily News

Turkish university to set up a center for rare diseases
Hurriyet Daily News
There are roughly 7 million people in Turkey suffering from rare diseases, most of whom are children, according to the university. The center aims to discover a cure for Aicardi syndrome, clawhand, Donohue syndrome, Erdheim Chester disease, Fabry ...


Thursday, November 03, 2016 7:04:57 AM

Renowned publisher, poet and drummer dies - Oxford Mail

Oxford Mail

Renowned publisher, poet and drummer dies
Oxford Mail
He was a vital part of the Oxford community, living in East Oxford, drumming in a street band, playing cricket, and chairing diverse cultural and professional organisations. He died suddenly from Erdheim Chester disease on August 5 this year. He is ...


Thursday, November 24, 2016 7:03:13 AM

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition - Cancer Network

Memorial Sloan Kettering Cancer Center

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition
Cancer Network
Of the patients with either Erdheim–Chester disease or Langerhans'-cell histiocytosis, the response rate was 43%—one complete response and five partial responses. There were also anecdotal responses among other BRAF-mutated cancers, including ...
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
New Kind of Cancer Study Finds New Targets for Tailored Treatments
First trial targeting mutation, not cancer type, gives mixed results
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Wednesday, August 19, 2015 5:51:35 PM

'Basket' Cancer Trial Hints at Promise - MedPage Today

MedPage Today

'Basket' Cancer Trial Hints at Promise
MedPage Today
... for melanoma demonstrated modest antitumor activity in nonmelanoma cancers that sporadically express the BRAF V600 mutation, the best results being in non-small cell lung cancer (NSCLC), Erdheim-Chester disease, and Langerhans-cell histiocytosis, ...


Wednesday, August 26, 2015 2:31:19 PM

Wife fighting to save others from rare disease after husband's death - KPLC-TV

Wife fighting to save others from rare disease after husband's death
KPLC-TV
There are only 200 registered cases of Erdheim-Chester Disease in the world today. It is the disease that took the life of Gary Brewer, of DeRidder, six years ago. Even in his death, his wife is fighting for others to live. Fond memories of their years ...


Wednesday, November 13, 2013 7:13:48 AM

Targeting Cancer: A Basketful of Hope - PLoS Blogs (blog)

PLoS Blogs (blog)

Targeting Cancer: A Basketful of Hope
PLoS Blogs (blog)
The NEJM study looked at BRAF V600 mutations in colorectal cancer, non–small-cell lung cancer (NSCLC), and the much rarer Erdheim–Chester disease, Langerhans'-cell histiocytosis, cholangiocarcinoma, anaplastic thyroid cancer, and multiple myeloma, ...


Thursday, September 03, 2015 9:48:37 AM

Fundraiser for Gurnal Jones Saturday - Rochester Democrat and Chronicle

Rochester Democrat and Chronicle

Fundraiser for Gurnal Jones Saturday
Rochester Democrat and Chronicle
A fundraiser will be held from 3-7 p.m. Saturday in honor of former Irondequoit and St. John Fisher College basketball standout Gurnal Jones, who is battling a rare disease called Erdheim-Chester. The event, “Gurn's Courage Quest,” will benefit the E-C ...


Thursday, September 17, 2015 6:50:47 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

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