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Erdheim-Chester disease - Google News
The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

Three Compelling Cancer Advances from 2015 - Memorial Sloan Kettering Cancer Center (blog)

Memorial Sloan Kettering Cancer Center (blog)

Three Compelling Cancer Advances from 2015
Memorial Sloan Kettering Cancer Center (blog)
A team led by Cancer Biology & Genetics Program Chair Scott Lowe confirmed that APC mutations spur the progression of the disease at later stages, suggesting that the gene may be a promising target for future drugs. They also demonstrated that ...


Tuesday, December 29, 2015 3:32:28 PM

Turkish university to set up a center for rare diseases - Hurriyet Daily News

Hurriyet Daily News

Turkish university to set up a center for rare diseases
Hurriyet Daily News
There are roughly 7 million people in Turkey suffering from rare diseases, most of whom are children, according to the university. The center aims to discover a cure for Aicardi syndrome, clawhand, Donohue syndrome, Erdheim Chester disease, Fabry ...


Thursday, November 03, 2016 7:04:57 AM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition - Cancer Network

Memorial Sloan Kettering Cancer Center

Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition
Cancer Network
Of the patients with either Erdheim–Chester disease or Langerhans'-cell histiocytosis, the response rate was 43%—one complete response and five partial responses. There were also anecdotal responses among other BRAF-mutated cancers, including ...
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
New Kind of Cancer Study Finds New Targets for Tailored Treatments
BRAF May Be a Good 'Target' in Nonmelanoma Cancers
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Thursday, August 20, 2015 3:55:14 PM

Long Beach Race Week: It's Not Always Like This - Scuttlebutt Sailing News

Scuttlebutt Sailing News

Long Beach Race Week: It's Not Always Like This
Scuttlebutt Sailing News
The mast buckled roughly eight-feet off the deck, and fell. Crew member Erik Ray was pinned beneath the detritus, and wriggled his way out. Ray, who suffers from Erdheim-Chester Disease, was deemed okay, and the crew pressed on, cutting away the rig.


Sunday, June 28, 2015 9:33:07 AM

Stafford student has high-flying day at base - Fredericksburg.com

Fredericksburg.com

Stafford student has high-flying day at base
Fredericksburg.com
On Mother's Day, he was diagnosed with Erdheim–Chester disease, which is tracked by the National Organization for Rare Disorders. The disease is characterized by excessive production of white blood cells that normally protect the immune system.


Saturday, February 06, 2016 12:03:28 AM

Targeting Cancer: A Basketful of Hope - PLoS Blogs (blog)

PLoS Blogs (blog)

Targeting Cancer: A Basketful of Hope
PLoS Blogs (blog)
The NEJM study looked at BRAF V600 mutations in colorectal cancer, non–small-cell lung cancer (NSCLC), and the much rarer Erdheim–Chester disease, Langerhans'-cell histiocytosis, cholangiocarcinoma, anaplastic thyroid cancer, and multiple myeloma, ...


Thursday, September 03, 2015 9:48:37 AM

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer - Popular Mechanics

Popular Mechanics

The Exceptional: What Miraculous Recoveries Can Teach Us About Beating Cancer
Popular Mechanics
After fifteen years of suffering from intractable bone pain, Porterfield was diagnosed with a rare disease called Erdheim-Chester, for which there are no FDA-approved treatments. By 2013 she was so ill that she couldn't walk. Her doctor gave her only a ...


Friday, October 16, 2015 12:25:24 PM

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