Effective Date:  July 21, 2006

Commitment to Privacy
Since our establishment in 1986, the Histiocytosis Association of America has been dedicated to preserving the confidentiality of the personal information of our donors and members.  To demonstrate the importance of your privacy, the Histiocytosis Association of America has established this policy outlining our usage of any personal information collected by our organization.  This policy can be found on our website at www.histio.org and is available from our office by calling 1-800-548-2758.  Our policy is updated annually.  Any changes will be reflected online and in any published materials.

Collection of Information
The Histiocytosis Association of America collects personal data via our online "information request" forms, over the phone, and/or by written request; it may include name, address, phone number, and email address.  In some cases, information regarding a (histiocytic disorders) patient may be collected, such as patient name, date of birth, diagnosis, date of diagnosis, and the relationship to that patient.  Physicians or other medical personnel may be asked to supply information regarding their institution of employment.  In the case where someone is making a contribution, payment information (i.e. credit card data) will be collected.

Use of Information
The Histiocytosis Association of America does not sell, rent or distribute donor, member or personal information to any for-profit or non-profit organization.  This practice is automatically applied and, thus, it is not necessary for you to contact us in order to make this request.  Access to all personal information is restricted to only those employees who need it to provide our services to you.

Online Privacy
Security and privacy online are of the utmost importance to the Histiocytosis Association of America.  Therefore, we work with our online system service provider, Kintera®, to insure that our online data collection process is safe and secure.  To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect online.

Contact Us
Should you have any questions/comments regarding our privacy policy, please contact us by phone at 1-800-548-2758.