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Click on the first letter of the last name of the patient you wish to locate
or scroll down to view each member individually.
Click on the patients name to visit their webpage.
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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
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A
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ANDREW AKIN
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Diagnosed with HLH at age 4 months
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APRIL ALLEN
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LCH; multisystem, DI
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TUCKER ANDERSON
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03/19/04 - 01/24/05
HLH and LCH.
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DANIELLE FAITH ARCO
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LCH with DI |
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ALEXI ASCENCIO
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LCH; multisystem
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HANNAH ASMAN
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LCH CNS; skin and bone |
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ELIAS J. ASMAR
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LCH; bone
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B
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ELYIE BASSELIN
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LCH Feb. 2006. She is doing great!
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HALEY BATTEN
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Diagnosed on 07/31/07 at 9 months old with LCH of skin.
Found in skull on 04/10/08. |
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ROBERT BEARD
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07/28/98 - 10/17/00
LCH; bone
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KENDALL BEHL
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Kendall has LCH multisystem, and enlarged spleen and liver. This is her remarkable story about becoming a BMT survivor.
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AIDEN BERGES
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Secondary HLH
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PAIGE ELIZABETH GARDNER BERRY
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Paige's journey reminds us all that life should be measured in depth not length.
HLH; April 10, 2005 - October 31, 2005
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ZOE BITTINGER
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LCH; Multisystem
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KRISTAN GRACE BLANKENSHIP
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Kristan received her life saving marrow on 9/26/02 and now is a hlh/bmt survivor! Here is her encouraging story.
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EMILY PAGE BORBOA
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Age 4, Diagnosed June 2002, LCH-skin, bone, and also has DI
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EMILY BRUCE
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LCH
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C
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JOHN CARPENTER
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LCH/CNS; brain, spine
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ELLA BEE CARRASCO
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LCH; single-system, bone.
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ANGEL CARRENO
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LCH; multisystem
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RILEY CONNOLLY
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LCH; lymphnodes, diagnosed Dec. 8 2006 |
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COLE CONTRERAS
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LCH; skin
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NATE COSBY
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Statistics aren't new ideas, they are numbers used to prove others wrong. God knows the plans He has for Nathan.
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SPENCER COSTELLO
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Multisystem LCH; Bone and skin.
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AIDEN COYNE
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Aiden is currently being treated at CHOP - He was diagnosed 8/04 at 17 months
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CAILYN COX
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LCH; skin and bone
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MAGGIE KATE CUMMINGS
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LCH; bone and lymph nodes
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D
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JOEY DAVIES
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LCH; multisystem/brain
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ED DEMPSEY
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LCH since 1999 |
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E
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BRADEN EARY
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Diagnosed with LCH in February 2000 at 11 months old. He is still undergoing chemo at Children's Medical Center in Dallas, TX.
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CHRISTOPHER ECKHARDT
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Multisystem LCH of lung, skin, and bone
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HAILEY NICOLE ELLIOTT
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Hailey was diagnosed with HLH in July 2003 and had a BMT 12/12/03
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F
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CALE FARRIS
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01/11/2005 - 12/23/2006
LCH; multisystem
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MEGAN FOSTER
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HLH; diagnosed March 2005 |
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KASEY ALEXA FOX
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LCH; Skin and Mastoid bone |
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G
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LAUREN GARGER
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LCH; bone
To view carepage, enter "laurensstory."
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DANIEL GARZA
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Diagnosed with FHLH at 12 months old
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ZACHARY GERMAN
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07/21/03 - 11/09/04
HLH
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AUSTIN GIACOMO
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Fighting Histiocytosis since 12/05
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SYDNEY SALEM GOLDING
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Systemic Juvenile Xanthogranuloma (JXG) involving skin, esophagus, lungs, liver, pancreas, spleen, digestive tract, lymph nodes and pericardial sac
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JOSHUA GONZALEZ
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Joshua age 5 was diagnosed with Multi focal LCH Bone. |
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ZACHARY GRANGER
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Multifocal LCH bone & DI, diagnosed at 3 years old, 05/30/2003
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COLIN GROSS
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HLH
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NOLAN GROSSI
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LCH; bone, bone marrow
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H
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BENJAMIN HANNA
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LCH; Diagnosed 06/04/07 |
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JACEY HARPER
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LCH |
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ANDREW HARRIS
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HLH
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TRISTAN HEBERT
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LCH; bone
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DEREK HENRY
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LCH; tumor on tailbone |
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GABRIELLA HENSLEY
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Our little angel was diagnosed with LCH on October 23, 2007 |
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ALEXANDER HOOKS
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LCH
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ZACHARY HUNTER
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LCH; multisystem
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I
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J
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WENDI JACKSON
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I was diagnosed with multi-system LCH in September of 2006 at age 37. I have lung and bone involvement.
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JAILYN JENKINS
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LCH
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LOGAN JOHNSON
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LCH; bone
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NICHOLAS JOHNSON
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LCH of mastoid and skull
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SAWYER JOHNSTON
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LCH of mastoid and skull |
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ROBBIE JONES
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LCH.
Carepage name: RobbiesJourney
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K
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EDDIE KENNY
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LCH; multisystem
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JACOB KNOTT
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LCH
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GIANNA AND OLIVIA KOPPEN
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Twins with FHL
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MELANIE KURTZ
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FHL
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L
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CHRISTIAN LAFOUNTAIN
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Diagnosed in December 2004 (age 2) with multisystem bone and lung LCH. In remission since January 2006!
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LEXIE LANDEROS
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LCH; bone
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WILLIAM TATE LATTER
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LCH; multisystem
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ELLA MARIE LAWLESS
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LCH |
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MAKENZIE LEE
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LCH Multisystem. Diagnosed in December 2004. Completely healed in February 2006 and doing great!
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TYLER LEE
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LCH: My site is not available yet, but please check out my sister Makenzie's site.
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KAYLA LERACH
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HLH; secondary
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BENJAMIN LEVIE
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HLH; secondary |
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DeCOTA LOGAN
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09/10/01 - 06/02/04
LCH
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KAEL LOVELOCK
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LCH |
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M
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CONNOR M.
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Connor was diagnosed with HLH in November 2006. Connor went to rest in his creators arms in September 2007.
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DAVID MADISON
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10/29/89 - 03/31/07
Secondary HLH |
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LUCAS MANSO
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LCH multisystem. After radiation Lucas had a relapse and had to start Chemo treatments. He is now 9 years old and doing great!
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ALEX MARKGRAF
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LCH; bone
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SYDNEY MARTIN
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Multifocal bone LCH. Just completed treatment and doing great. 04/08 |
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LINDSAY KATE McALPINE
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Fighting LCH since 6/05
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MORGAN McDONALD
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Fighting LCH since 1/02
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CONNOR McNEISH
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Secondary HLH, dx 6/06, now in complete remission and thriving.
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ROMAN ANTHONY MELENDEZ
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11/23/04 - 08/30/07
XLP and HLH; diagnosed on 02/18/07 |
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WAYLON MORRISON
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Waylon was diagnosed with LCH 1/06 and has had DI since 8/05. His affected sites are pituitary and skull bone.
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Eli William Murphy
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09/20/07 - 11/08/07
Our Precious Little Angel
HLH
No website at this time. |
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N
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ERIN NEWTON
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LCH; bone
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O
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KADEN ODEM
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Multisystem LCH
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RYAN OSBORN
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Diagnosed Nov 2007 with LCH;
left mandible and left parietal |
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P
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OWEN PAUL
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This site is about Owen Paul and the rare disease of Langerhans Cell Histiocytosis that he was diagnosed with in October 1998.
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HANNAH PAWLOWSKI
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Hannah was diagnosed 3/06 with LCH in the mastoid/temporal bone. This is her story.
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BENJAMIN PETTY
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03/22/82 - 03/02/03
HLH
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LOGAN W. PHILLIPS
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04/12/04 - 07/27/04
HLH
Our little man who gave his all.
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MAX POUGET
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LCH; skin
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ABBY POLAKOWSKI
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LCH of the bone. |
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NAEEM PROJANSKY
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HLH
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Q
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R
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BROOKE ROHRER
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LCH; Single system, multi-focal bone involvement
Diagnosed May 25, 2007 |
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S
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PATRICK SANGER
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LCH since 02/11/2004
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EMILY SELLERS
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LCH; bone
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ANGELINA SERANIAN
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LCH; bone
To view carepage, enter "ForAngelina."
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NICHOLAS JAKE SERRANO
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11/29/05 - 11/28/06
HLH
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JAXSON SHRULL
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LCH; skin
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HANOCH SMITH
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LCH/CNS
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OLIVIA ST GERMAIN
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Olivia began treatment on Sept 11th for LCH of the Orbit, skull and neck. God has kept his hand on her the entire time.
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BENJAMIN STOKMAN
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Juvenile xanthogranulomatosis (JXG)
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BENJAMIN SUCHONIC
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Our path to trusting the Lord was paved with LCH. Our "new normal" courtesy of an orbital lesion diagnosed January 2003. |
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GREGORY SUVER JR.
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11/21/04 - 02/20/06
LCH; multisystem
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TIA SY
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04/26/07 - 06/08/07
LCH; multisystem |
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T
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CARINA TASSONE
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LCH; skin and liver |
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OSSIE TAUNTON
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LCH; multisystem
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JAYSON THOMAS
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01/22/1998 - 06/08/1999
FHL |
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BRENDAN J. TORREY
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Multi-system LCH
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U
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GRACE URBAN
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LCH; bone. Grace is off treatment, and lesions have decreased in size.
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V
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ANNA REBECCA "V"
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08/14/02 - 03/04/03
FHL
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ISABELLA KATELYN VENTOCILLA
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LCH
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JACOB VOISINET
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Diagnosed with HLH at 18 months & received unrelated BMT 9/2005...complicated by EBV/CMV.
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SARAH LYNN VIGUE
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11/12/89 - 10/10/00
HLH; Sarah is a loving and beautiful spirit that lives on in all that knew her.
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W
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SKYLER WARREN
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LCH; multisystem
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CAIDEN WEBB
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Diagnosed with LCH of the skin in December of 2006 |
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GABRIELLE WEDEKING
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HLH
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DREW WHEELER
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Drew is finished with chemo and doing well! He's taught me more than I ever knew possible from a 3 year old
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PARKER WHITE
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Single site LCH; eye/brain involvement |
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AMANDA CHRISTINE WILSON
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06/29/95 - 10/10/95
LCH
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DUSTIN WILSON
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LCH multifocal bone, diagnosed Sept. 1, 2006. Treated at Arkansas Children's Hospital
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KRISTEN WINKELHORST
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LCH; multisystem, DI
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CHRISTOPHER WRIGHT
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LCH |
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X
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Y
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KENNY YEE
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LCH
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Z
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TYLER ZIMMERMAN
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Tyler diagnosed in June 2006 with LCH (Bone). A glimpse into our journey.
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