updates

 

April 12, 2020

Missed our Histio Town Hall? No problem! Here is a replay of our conversation with our panel of doctors.

You can also browse a list of FAQs here.


 

April 3, 2020

Histio Town Hall and Histiocyte Society Medical Statement

You’re invited to special 1-hour virtual event - Histio Town Hall: COVID-19 and Our Community – on Tuesday, April 7th at 3:00pm ETWe’ll be talking about what we're doing in response to the COVID-19 pandemic and answering your questions. Plus, four doctors from the Histiocyte Society will be sharing the latest updates and information about COVID-19 and its impact on the Histio Community. You will also get answers to the most asked questions we've received from histio patients. We hope you’ll join us! Space is limited – save your spot today!

Prior to the Town Hall, we encourage you to read this recently released medical statement made by the Histiocyte Society and submit your questions in advance. We’ll do our best to address as many questions as we can during the session.

doctorsRegister
If multiple members in one household wish to attend, we encourage you to register only once and share a single device for viewing (if possible while social distancing)This will allow us to maximize the number of histio patients and families who are able to participate live. 

Can’t participate live? No problem! We ask that you do not register at this time, however, we will be recording the town hall and will share it with the entire Histio Community as soon as we can.  

 

March 30, 2020

 

As we navigate this global crisis together, the Histiocytosis Association would like to reinforce our commitment to supporting the patients and families that make up the Histio Community that we serve and the generous donors that support us. We remain focused on our mission and you can be assured that although things will continue to change in the coming days/weeks, our resources and support for you will remain a constant. 

Hear more from our Executive Director, Deanna, in the video above and for the most current information and updates please visit our COVID-19 Histio Hub at www.histio.org/covid19.


March 13, 2020

The health and safety of you and your family - our Histio Community - is of utmost importance to us. We have been closely monitoring the developments of the coronavirus (COVID-19) as well as the professional advice being released by different health agencies across the globe. Several of you have reached out with questions about how COVID-19 may affect histio patients. I want to assure you that we are working closely with the medical leadership of the Histiocyte Society to help provide more information to you as soon as it is available. Reducing your chance of exposure and following the guidelines outlined by the Centers for Disease Control and Prevention (CDC) in the United States and the World Health Organization (WHO) is the best way to be proactive during this time.

One of the many challenges with COVID-19 is how quickly it is spreading. We have taken the necessary steps to do our part in trying to slow the spread by:

  • Sharing helpful and educational tips with the Histio Community and our staff
  • Postponing our scheduled NYC Patient and Family Regional Meeting
  • Continuing to evaluate upcoming events and local health mandates in those locations
  • Limiting staff travel for nonessential business meetings

One additional way we are doing our part is by transitioning our office staff into temporarily working remotely, effective immediately. Our staff will still be available to you through phone, email, and social media. If you call our office, we ask that you leave a detailed voicemail, including your phone number, and a staff member will respond to you as soon as possible. We receive immediate notifications of voicemails so we will return your call promptly. And as always, you can reach us anytime at info@histio.org. Our office is well-equipped and experienced in working remotely so you can expect ‘business as usual’ from our team.

We recognize the news and information about COVID-19 is unsettling and especially worrisome for older adults and those with compromised immune systems. Should you have any questions about your specific health concerns or if you begin to show symptoms of fever, cough, chest pain, and shortness of breath, we encourage you to reach out to your medical team for evaluation.

As the situation continues to evolve and we receive more information, we will be sure to provide it to you through email, social media and on our website at www.histio.org/covid19.

We will continue to keep you updated and serve the Histio Community with our deepest commitment as we all navigate this situation and strive to help keep one another safe and informed.

Sincerely,

Deanna Fournier

Deanna Fournier
Executive Director

 

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