Financial Information

A Critical Purpose

Since it was founded in 1986, the Histiocytosis Association has worked efficiently and effectively to provide vital services for patients, families, physicians and scientists fighting histiocytic disorders.  With the support of a small, highly dedicated staff and a corps of skilled volunteers, the Association is able to fund clinical trials and research initiatives, host national and regional conferences, and provide invaluable information to patients, their families and physicians. 

It is important to note that because histiocytic disorders affect such a small percentage of the population, these diseases do not generate significant government-supported research.  The Association must rely solely on contributions from corporations, foundations and individual donors to fund critical research, build awareness and implement essential outreach initiatives.

The Cycle of Service

The Histiocytosis Association is committed to getting the greatest possible benefit from every dollar donated and every effort undertaken.  Our service model ensures that the Association’s programs and services are working in tandem – strategically building upon one another to support the search for a cure and the patients fighting these diseases today.

“The Cycle” illustrates how each aspect of our work leads to and sustains the next, creating a continuous succession of effective investment and reinvestment.  Each of the five components in “The Cycle” is crucial to the success of the others and to the overall success of creating a world free of histiocytic disorders.

Annual Report

Latest Annual Report - coming soon!

For additional information, visit our Impacting the Histio Community webpage. 

Financial Statements

The Histiocytosis Association is recognized as a tax-exempt organization under section 501(c)3 of the Internal Revenue Code, Federal Tax ID number 22-2827069.

The Association’s most recent financial statements and documents can be viewed by clicking on the following links:

New Resources Available

New Resources Available

2019 IRS Form 990 2019 Independent Financial Audit - Coming soon!


Income and Expenses Overview

Based on the Fiscal Year ending December 31, 2018. Data for 2019 will be available as soon as our independent financial audit is completed.

Sources of Income


Distribution of Expenses


Total Expense $1,239,358



Previous Financial Statements

2018 IRS Form 990
2018 Independent Financial Audit

2017 IRS Form 990
2017 Independent Financial Audit 

2016 Annual Report
2016 IRS Form 990
2016 Independent Financial Audit




The Histiocytosis Association is a Four-Star rated charity with Charity Navigator, America’s largest independent charity evaluator. Receiving a 4-star rating means we have taken key steps to show you that we are accountable, transparent, and financially healthy. Learn about Charity Navigator and its Rating System.

The Association is a gold-level GuideStar Exchange participant, demonstrating its for commitment to transparency. GuideStar’s mission is to revolutionize philanthropy and nonprofit practice by providing information that advances transparency, enables users to make better decisions, and encourages charitable giving.




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© Histiocytosis Association, Inc.
332 North Broadway, Pitman, New Jersey  08071 USA
Phone: +1 856-589-6606 | Fax: +1 856-589-6614
US & Canada Toll-Free: 1-800-548-2758 
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Tax ID: 22-2827069 | Contact Us 

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