Features and Testimonials


Grant Announcement Communications

The Association is pleased to report that the Histiocytosis Association Research Program’s grant announcement was featured in an edition of OrphaNews Europe, the bi-monthly e-newsletter of the European Commission's Rare Diseases Task Force. The newsletter provides the European rare disease community with vital information regarding orphan drugs, research, national and international policy, funding opportunities, patient associations and events. Established in 2004, the Task Force works directly with the European Commission Public Health Directorate in promoting collaborative efforts for the prevention, diagnosis, and treatment of rare diseases.

By promoting the Association’s research program, OrphaNews Europe has made physicians and scientists throughout Europe aware of the opportunity to apply for grant funding for research into the histiocytic disorders. This exposure is crucial to the success of our research program, which is designed to fund the best and most promising clinical and basic research worldwide, regardless of where it takes place.

To stimulate increased participation from researchers within the United States and abroad, the Association has arranged for the Request for Research Proposals to be distributed and featured on the websites of influential organizations including RDFunding.org, the American Society of Hematology (ASH) and GrantsNet.

The Association is delighted to share this exciting news with you as each high quality grant funded takes research one step closer to identifying better methods of treatment and ultimately, a cure.



The financial support of the Histiocytosis Association [of America] has put research in the histiocytic disorders, and research in dendritic cells and monocytes/macrophages, on the map!
Maarten Egeler MD, PhD
Leiden University Medical Center
Leiden, The Netherlands

"I would like to sincerely thank the Histiocytosis Association [of America] for providing support for my research during a critical phase of my development as a physician and scientist. While still in training, I was drawn to patients with histiocytic disorders and to the scientific puzzle that these disorders represent." read more
Michael Jordan, MD
Cincinnati Children's Medical Center
Cincinnati, OH USA

“Over the past several years, the Histiocytosis Association [of America]-funded research has changed our basic understanding of the origins of Langerhans cells in LCH. Our ultimate goal is to apply these discoveries to develop new diagnostic and therapeutic strategies for patients with LCH. Without support from the Association and families that support the Association, none of this research would be possible. Thank you.”
Carl Allen MD, PhD, Assistant Professor
Texas Children's Cancer Center
Houston, Texas USA

“We are very happy and proud to be selected by the Histiocytosis Association [of America] for support of our research. The Histiocytosis Association [of America] is unique by bridging the motivation of parents and relatives, the burden of patients, and the passion of doctors and researchers to gain insight into the disease and find a solution for cure.”
Marion Schneider MD
Universitatsklinikum Ulm
Ulm, Germany

“The Histiocytosis Association [of America] award is allowing us to build our research program, despite the challenging economic climate. With this support, we will continue to make critical progress towards understanding the biologic basis for hemophagocytic lymphohistiocytosis disorders. It is our hope we will gain knowledge that ultimately will enhance the treatment of patients for many years to come.”
Kimberly Risma MD
Cincinnati Children’s Medical Center
Cincinnati, OH USA

“We are very grateful to the Histiocytosis Association [of America] for the funding we have received. It will be very useful for our research into Erdheim-Chester Disease. We sincerely thank you for this wonderful gift.”
Zahir Amoura MD; Julien Haroche MD
Hospital of Paris
Paris, France

“It’s a great honor and pleasure for me to be awarded a Histiocytosis Association [of America] research grant. I know that our scientific effort will contribute to a better understanding of Langerhans cell histiocytosis. I deeply appreciate all that the members of the Histiocytosis Association have made possible.”
Ichiro Murakami MD, PhD
Okayama University
Okayama, Japan

“I am writing to announce that I have just been awarded an NIH grant for my project: Cytokine Expression in LCH and Therapeutic Response. This 2 year award will all me to expand my current study supported by the Histiocytosis Association [of America] in a dramatic way.” read more
Ken McClain MD, PhD
Texas Children’s Hospital
Houston, TX USA


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