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Erdheim-Chester disease - Google News
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Sunday, June 24, 2018 8:52:15 AM

Kentucky Derby Festival runners raise over $158000 for charities - The Lane Report

Kentucky Derby Festival runners raise over $158000 for charities
The Lane Report
... James Graham Brown Cancer Center, Juvenile Diabetes Research Foundation, Kentucky Animal Relief Fund, Kosair Charities, Leukemia & Lymphoma Society, The Lord's Kitchen, The Molly Johnson Foundation, Noah Stylin' – Erdheim-Chester Disease, ...


Friday, June 22, 2018 2:05:14 PM

Drugs OK'd To Hit Tumor Genes Still a Basket of One. Are More Coming? - Xconomy

Xconomy

Drugs OK'd To Hit Tumor Genes Still a Basket of One. Are More Coming?
Xconomy
In 2017, the FDA green-lighted the Roche drug vemurafinib (Zelboraf) for Erdheim-Chester disease, a rare blood cancer, based on 22 patients who took part in a basket study funded by Roche. No additional evidence was necessary. But the rest of that ...


Thursday, May 31, 2018 3:29:48 PM

FDA approves first treatment for certain patients with Erdheim-Chester Disease, a rare blood cancer - FDA.gov

Medscape

FDA approves first treatment for certain patients with Erdheim-Chester Disease, a rare blood cancer
FDA.gov
The U.S. Food and Drug Administration today expanded the approval of Zelboraf (vemurafenib) to include the treatment of certain adult patients with Erdheim-Chester Disease (ECD), a rare cancer of the blood. Zelboraf is indicated to treat patients whose ...
First-Ever FDA Approval for Erdheim-Chester Disease
First Tx for Erdheim-Chester Disease, a Rare Blood Cancer
FDA Approves Zelboraf (Vemurafenib) for Erdheim-Chester Disease with BRAF V600 Mutation
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Monday, November 06, 2017 11:39:27 AM

CNS Abnormalities Common in Erdheim-Chester Disease - Neurology Advisor

Neurology Advisor

CNS Abnormalities Common in Erdheim-Chester Disease
Neurology Advisor
Patients with Erdheim-Chester disease (ECD) are at risk for a variety of central nervous system (CNS) abnormalities, and brain and spine magnetic resonance imaging (MRI) may be necessary to determine the extent of disease and its possible prognosis, ...


Friday, February 23, 2018 8:36:41 AM

FDA Approves Vemurafenib for Treating Erdheim-Chester Disease - Cancer Network

Cancer Network

FDA Approves Vemurafenib for Treating Erdheim-Chester Disease
Cancer Network
The US Food and Drug Administration (FDA) has expanded the approval of vemurafenib (Zelboraf) to include the treatment of a rare, slow-growing blood cancer, Erdheim–Chester disease, for adult BRAF V600–positive patients. This marks the first approval ...


Thursday, November 09, 2017 3:29:33 PM

Vemurafenib Effective in BRAF-mutated Erdheim-Chester Disease and Langerhans Cell Histiocytosis - Cancer Therapy Advisor

Cancer Therapy Advisor

Vemurafenib Effective in BRAF-mutated Erdheim-Chester Disease and Langerhans Cell Histiocytosis
Cancer Therapy Advisor
Vemurafenib confers a durable and clinically beneficial effect among patients with BRAF-mutant Erdheim-Chester disease (ECD) or Langerhans cell histiocytosis (LCH), according to a study published in JAMA Oncology.1. Although patients with ECD or LCH ...


Thursday, November 30, 2017 1:39:52 PM

On Rare Disease Day, experts say 'Don't give up' - KING5.com

KING5.com

On Rare Disease Day, experts say 'Don't give up'
KING5.com
“(The doctor) called us up one day and said 'I figured out what's going on. I have good news and bad news. You have Erdheim-Chester Disease,'” said Bonnie. Erdheim-Chester Disease (ECD) is one of 7,000 rare diseases and disorders that affect 30 million ...


Wednesday, February 28, 2018 11:12:54 PM

Erdheim-Chester Disease Treatment Gets FDA Priority Review and Breakthrough Therapy Designation - Rare Disease Report

Erdheim-Chester Disease Treatment Gets FDA Priority Review and Breakthrough Therapy Designation
Rare Disease Report
The U.S. Food and Drug Administration (FDA) has accepted Genentech's supplemental New Drug Application (sNDA) and granted Priority Review for Zelboraf (vemurafenib), a therapy for patients with Erdheim-Chester disease (ECD) with a BRAF V600 ...


Monday, August 07, 2017 10:29:49 AM

Martin's Lofaro trying to beat rare disease - Jackson Sun

Jackson Sun

Martin's Lofaro trying to beat rare disease
Jackson Sun
MARTIN – “You're sick. There's no cure. You can't beat this.” Those were the three statements that resonated with Joe Lofaro in October of 2015 when he was diagnosed with Erdheim Chester's Disease (ECD). Lofaro said his response took a few seconds to ...


Tuesday, February 27, 2018 5:44:20 PM

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