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Erdheim-Chester disease - Google News
Genes associated with Erdheim-Chester disease also linked to cancer - Science Daily

Genes associated with Erdheim-Chester disease also linked to cancer
Science Daily
National Human Genome Research Institute (NHGRI) researchers have identified new genes associated with the Erdheim-Chester disease (ECD) and some possible new therapies. Findings on this ultra-rare disease, found in approximately 600 people in the ...


Monday, April 03, 2017 12:40:33 PM

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

NORD News for April - The Voice of the Community - Rare Disease Report

Rare Disease Report

NORD News for April - The Voice of the Community
Rare Disease Report
The Running for Rare Team made an outstanding showing at the 2017 Boston Marathon, with 14 runners and a large cheering section of NORD staff and rare disease Community Partners, who are patients, caregivers and patient advocates. The team runs ...


Monday, April 24, 2017 11:41:49 PM

Is Rheumatology in a Rut? - Medscape

Medscape

Is Rheumatology in a Rut?
Medscape
If you believe the bulletins put out by the American College of Rheumatology, we have pretty much conquered all of the well-known rheumatic conditions and are now simply investigating the really uncommon ones, such as Erdheim-Chester disease or ...


Wednesday, April 05, 2017 10:01:54 AM

David Attwooll obituary - The Guardian

The Guardian

David Attwooll obituary
The Guardian
My father, David Attwooll, who has died aged 67 from Erdheim Chester disease, was a pioneering publisher, fine drummer and critically acclaimed poet. He was passionate about people and social justice, and he had a visionary belief in the power of ...


Wednesday, November 16, 2016 8:28:44 AM

NB woman calling on government to cover cost of life-saving drug - CTV News

CTV News

NB woman calling on government to cover cost of life-saving drug
CTV News
A woman who is fighting a rare form of bone cancer is calling on the New Brunswick government to cover the cost of her medication. Only about 600 cases of Erdheim-Chester Disease have been reported worldwide and Kelly Wilson says she will die without ...


Sunday, September 25, 2016 3:54:06 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

Liverpool University Press chair David Attwooll dies - The Bookseller

Liverpool University Press chair David Attwooll dies
The Bookseller
David Attwooll, poet and chair of Liverpool University Press, has died at the age of 67 after succumbing to Erdheim-Chester Disease. Attwooll was born in 1949 and began his career in publishing at Oxford University Press in 1970. By the time Attwooll ...


Wednesday, August 10, 2016 12:33:20 PM

New Kind of Cancer Study Finds New Targets for Tailored Treatments - NBCNews.com

NBCNews.com

New Kind of Cancer Study Finds New Targets for Tailored Treatments
NBCNews.com
It's called Erdheim-Chester disease, a very rare disorder in which the immune system produces excess quantities of cells called histiocytes. These cells damage the brain, kidneys and other organs. Half of Erdheim-Chester patients have the BRAF mutation.
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Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”


Wednesday, August 19, 2015 5:23:16 PM

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