Histio Resource Directory
International Resources
The following is a list of resources available in countries outside of the United States.
Contact a Family
helpline@cafamily.org.uk | www.cafamily.org.uk
This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.
Children's Oncology Camping Association International
(888) 999-2267 | www.cocai.org
Children's Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer
ECD Global Alliance
support@erdheim-chester.org | www.erdheim-chester.org
An organization comprised of ECD patients and their caregivers from around the world. Their mission is to provide support to ECD patients and their loved ones, raise awareness of ECD, and promote research that will help those affected by ECD.
Lab Tests Online
labtestsonline.org
Lab Tests Online has been designed to help you, as a patient or family caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.
Make-a-Wish Foundation International
(800) 965-9474 | www.worldwish.org
This foundation grants the wishes of children with terminal or life-threatening illnesses
Project Sunshine
(212) 354-8035 | www.projectsunshine.org
Project Sunshine is a nonprofit organization that provides free social, educational and recreational programs to children and families affected by medical challenges. International sites include Canada, China, Israel, Kenya, and Puerto Rico.
Global Genes
globalgenes@globalgenes.org | www.globalgenes.org
Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®.
Rare Lung Diseases Consortium
(513)-636-6361 | www.rarediseasesnetwork.org/cms/rld
The Rare Lung Diseases Consortium (RLDC) is a network of physicians and patients working to accelerate clinical research and improve medical care for individuals with Rare Lung Diseases.
Ronald McDonal House Charities
(630) 623-7048 | info@rmhc.org | rmhc.org
Provides low-cost, temporary housing for children and their families while undergoing treatment. Their website includes a listing of international locations.
Shadow Buddies
(913) 642-4646 | www.shadowbuddies.org
Shadow Buddies are condition-specific dolls designed to be a friend "just like me" for seriously ill or medically challenged children. Provide comfort to children, as well as effective method for educating newly-diagnosed children.
International Histio Organizations
The following is a list of Histio Organizations from around the world.
Asociación Argentina de Histocitosis (A.A.H)
info@aah.org.ar | www.aah.org.ar
Ciudad Autonoma de Buenos Aires, Argentina
Langerhans Cel Histiocytose – Belgium
02/6466369 | info@lch.be | www.lch.be
Belgium
Histiocytosis Association of Canada
(250) 764-6104 | histio.canada@shaw.ca | www.histiocytosis.ca
Kelowna, British Columbia, Canada
L'Association Histiocytose France
01 60 66 93 77 | www.histiocytose.org
France
Histiozytose Hilfe e.V.
www.histiozytose.org
Germany
German Patient Association for Histiocytosis
Artemis Association on Histiocytoses - Greece
+45 20 453 | info@histioartemis.gr | www.histioartemis.gr
Greece
Histio Israel
smith01@netvision.net.il | www.histioisrael.org
Israel
Associazione Italiana Istiocitosi (AIRI)
041-5340721 | sede@istiocitosi.org | www.istiocitosi.org
Italy
LCH Patient Association - Japan
http://lch-friends.org/
Japan
Stichting Langerhans Cel Histiocytose
www.histio.nl
Netherlands
Asociacion Espanola contra la Histiocitosis (ACHE)
www.histiocitosis.org
Spain
Foraldraforeningen for barn med Histiocytos
0733507572 | info@histiocytos.se | www.histiocytos.seSweden
Histio UK - United Kingdom
www.histiouk.org
United Kingdom
Parent association based in the United Kingdom