Histio Resource Directory

 

International Resources

The following is a list of resources available in countries outside of the United States.


Contact a Family

helpline@cafamily.org.uk | www.cafamily.org.uk

This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.


Children's Oncology Camping Association International

(888) 999-2267 | www.cocai.org
Children's Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer


ECD Global Alliance

support@erdheim-chester.org | www.erdheim-chester.org
An organization comprised of ECD patients and their caregivers from around the world. Their mission is to provide support to ECD patients and their loved ones, raise awareness of ECD, and promote research that will help those affected by ECD.


Lab Tests Online

labtestsonline.org
Lab Tests Online has been designed to help you, as a patient or family caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.


Make-a-Wish Foundation International

(800) 965-9474 | www.worldwish.org
This foundation grants the wishes of children with terminal or life-threatening illnesses


Project Sunshine

(212) 354-8035 | www.projectsunshine.org
Project Sunshine is a nonprofit organization that provides free social, educational and recreational programs to children and families affected by medical challenges. International sites include Canada, China, Israel, Kenya, and Puerto Rico.

Global Genes

globalgenes@globalgenes.org | www.globalgenes.org
Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. 

Rare Lung Diseases Consortium

(513)-636-6361 | www.rarediseasesnetwork.org/cms/rld
The Rare Lung Diseases Consortium (RLDC) is a network of physicians and patients working to accelerate clinical research and improve medical care for individuals with Rare Lung Diseases.

Ronald McDonal House Charities

(630) 623-7048 | info@rmhc.org | rmhc.org
Provides low-cost, temporary housing for children and their families while undergoing treatment. Their website includes a listing of international locations.


Shadow Buddies

(913) 642-4646 | www.shadowbuddies.org
Shadow Buddies are condition-specific dolls designed to be a friend "just like me" for seriously ill or medically challenged children. Provide comfort to children, as well as effective method for educating newly-diagnosed children.

 

International Histio Organizations

The following is a list of Histio Organizations from around the world.

 

Asociación Argentina de Histocitosis (A.A.H)

info@aah.org.ar | www.aah.org.ar
Ciudad Autonoma de Buenos Aires, Argentina

Langerhans Cel Histiocytose – Belgium

02/6466369 | info@lch.be | www.lch.be
Belgium

Histiocytosis Association of Canada

(250) 764-6104 | histio.canada@shaw.ca | www.histiocytosis.ca
Kelowna, British Columbia, Canada

L'Association Histiocytose France

01 60 66 93 77 | www.histiocytose.org
France

Histiozytose Hilfe e.V.

www.histiozytose.org
Germany
German Patient Association for Histiocytosis

Artemis Association on Histiocytoses - Greece

+45 20 453 | info@histioartemis.gr | www.histioartemis.gr
Greece

Histio Israel

smith01@netvision.net.il | www.histioisrael.org
Israel

Associazione Italiana Istiocitosi (AIRI)

041-5340721 | sede@istiocitosi.org | www.istiocitosi.org
Italy

LCH Patient Association - Japan

http://lch-friends.org/
Japan

Stichting Langerhans Cel Histiocytose

www.histio.nl
Netherlands

Asociacion Espanola contra la Histiocitosis (ACHE)

www.histiocitosis.org
Spain

Foraldraforeningen for barn med Histiocytos

0733507572 | info@histiocytos.se | www.histiocytos.se
Sweden


Histio UK - United Kingdom

www.histiouk.org
United Kingdom
Parent association based in the United Kingdom

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