Introducing Our New Executive Director

In the Fall, I announced my retirement and the start of a search for an Executive Director who would be committed to our cause, passionate about people, and understanding of the unique needs of a global nonprofit organization. After an extensive nationwide search, the Board of Trustees has found someone who we are confident will be an exceptional leader for the Histiocytosis Association and the Histio Community.

Deanna FournierI am excited to introduce you to our new Executive Director, Deanna Fournier.

Deanna was diagnosed with Langerhans cell histiocytosis (LCH) at the age of 6 and has been in remission for over 20 years. Deanna has been involved in the Histiocytosis Association since the age of 7, helping to launch a PenPal club in an effort to connect patients and families worldwide, volunteering for various events and fundraisers, and most recently serving on the Board of Trustees as Secretary. She brings over 7+ years of global business and talent development experience, is a passionate leader focused on supporting community and research alike, and has an unwavering dedication to finding a cure for all histiocytic disorders.

As the Association looks to the future, Deanna has a strong vision and commitment to continuing the fight for a cure:

“The Histiocytosis Association is a beacon of hope for so many families around the world, including my own. Over the last 35 years, under the leadership of founder Jeffrey Toughill, the Association has realized tremendous strides in treatment protocols and research advances, and has become a leading resource for education, awareness, and support for our global community. Our vision for the future, is to not only continue to support those whose lives have been impacted by histiocytic disorders, but ultimately, to realize a cure. I am honored to have the opportunity to dedicate my life’s work to supporting the Association’s mission and the families of the Histio Community.”

The Histiocytosis Association’s Board of Trustees was committed to conducting a transparent and thorough search for our next leader. The Board employed the assistance of Bloch & Reed Association Advisors, an organization that specializes in assisting non-profits in recruiting executive leaders. Working with Bloch & Reed, the Board sourced and reviewed over 100 candidate resumes from throughout the United States. Using a qualitative and quantitative process, the most experienced and passionate prospects were selected for interviews. From this exceptionally qualified and enthusiastic pool, the Board selected Deanna Fournier.

Deanna is eager to connect with you and walk alongside you on your journey with histio. She will be stepping into the role of Executive Director on February 18, 2020. Throughout most of 2020 I will be remain actively involved with the Association in an Executive Advisor role and look forward to a smooth transition with Deanna bringing new hopes and visions for the Histiocytosis Association.

Together as a community, we’ve taken the idea of a determined group of people sitting around a small kitchen table in Pitman, New Jersey and grown it into a globally recognized organization that is truly making a difference. Thank you for sharing your joys and sorrows with me over these last 35 years. There is an incredible future ahead - one full of promise and hope for a cure!

With warmest regards,

Jeffrey M. Toughill
President and CEO

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