A Reason to Celebrate

Honoring the heroes of the past and innovators of the future, the National Organization for Rare Disorders (NORD) hosted a 30th Anniversary Gala for the entire rare disease community on Tuesday, May 14, 2013.  This momentous occasion provided an exciting opportunity to celebrate the history and lasting impact of both the Orphan Drug Act of 1983 and NORD.

Histio Warrior Speaks at the NORD 30th Anniversary Gala

Ian Brown, a Histio Warrior since 2006, and his mother, Tracy Brown attended the Anniversary Celebration in Washington, DC.  Ian was a guest of NORD, along with two other young patient advocates, to help celebrate this milestone for rare diseases everywhere.

Ian, age 7, spoke at the event along with Megan Barron, a Duke University senior who is an advocate living with dystrophic epidermolysis bullosa, and Brooke Foster, an 11-year-old advocate who lives with mastocytosis. All three young advocates thanked the distinguished NORD honorees and presented them with awards.

Tracy and Ian Brown give a brief presentation on the importance of raising awareness and funds for Ian's rare disease, Langerhans cell histiocytosis.

Ian Brown speaks to the more than 500 attendees of the NORD 30th Anniversary Gala held at Mellon Auditorium in Washington, DC.

Ian Brown was among three young advocates who had the honor of presenting awards to distinguished heroes in the rare disease community.

According to NORD, since the Orphan Drug Act was passed there have been more than 400 orphan therapies approved and hundreds more are in the pipeline. We invite you to learn more about the impact made on the rare disease community in the past 30 years by NORD and the Orphan Drug Act. Let’s celebrate!

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