Awareness Month Pledge

Sign the pledge to spread awareness during September! Share with friends and family, asking them to do the same. We've provided resources below and on our Educate page to help you fulfill your pledge. 

Sign  Awareness Pledge


Social Media

Social Media is a great tool for spreading awareness about histiocytosis! Get involved in the conversation and ask your friends to join in too! 

Download the Awareness Ribbon and Social Media Badges

Change your profile picture or cover photo on social media to the awareness ribbon or a social media badge. When people ask, share why you're rare and how histiocytosis has affected your life. 

Awareness Ribbons



Awareness Badges

I Know A Histio Warrior
I Know A Histio Warrior

Do You Know Histio?
Do You Know Histio

Cover Photo Badges

Click an image below for the full-resolution version, which you can download and then upload as your cover photo on social media.





I Know Histio

Facebook Profile Picture Frames

Prefer to add a frame around your existing Facebook profile picture? We've got you covered!

To add a frame through the Facebook Mobile App:
  • Go to your profile
  • Tap on your circular profile image
  • Tap “Add Frame”
  • Search for our frames in the search box at the top or scroll down to see “Frames From Pages You Like” and look for the ones by the Histiocytosis Association
  • Choose your preferences
  • Click Save
To add a frame through the Facebook website:
  • Go to your profile
  • Click on your circular profile image and "Update" 
  • Click “Add Frame”
  • Search for our frames in the search box at the top or scroll down to see “Frames From Pages You Like” and look for the ones by the Histiocytosis Association
  • Choose your preferences
  • Click "Use as profile picture"
  • A box will open offering you’re the opportunity to donate to the Histiocytosis Association but it is NOT required. To exit without donating, simply click the “x” in the upper right corner of the popup box.
  • Close out of the profile picture/frame window and refresh your Facebook profile to see your updated awareness profile pic!


Use this hashtag when you post on social media so your posts are a part of the histio social media conversation!



Tie A Blue Ribbon For Histio

Tie A RibbonThe Tie a Blue Ribbon for Histio campaign is a grassroots initiative that brings Histio awareness into communities across the country. Tie a blue ribbon around your “old” oak tree, mailbox or light post and invite your family, friends and neighbors to do the same. Let’s paint our towns in blue ribbons all throughout the month of September to help spread the word about histiocytic disorders. Order your Blue Ribbons today in our estore!


Share Your Story

bookSubmit a photo and tell us about your warrior. Our goal is to share some of your stories on our Social Media so that we can bring our rare community a little closer. Once you have filled out this questionnaire, please send a picture of your Warrior and your Warrior's name to  We encourage you to share with your network of friends and family as well. September is all about awareness and by educating others on how histio has impacted you, your family, or someone close to you, you are helping spread the word about this rare disease. Deadline for stories and photos submissions is September 9, 2019. We look forward to hearing about your journey!

Submit your story today!

Awareness Month Events

September 7 - Taste of Italy (Private dinner)
September 29 - Ty-Fighters 5K, Virigina (Participate here)
September 29 - Cuts For Ethan, Morristown, NJ (Learn More Here)

Hosting your own awareness or fundraising event? Let us know about it! Contact

Local Media

Let your local media outlets know that September is Histiocytosis Awareness Month!  The Association has prepared a fill-in-the-blank press release that you can use to help bring attention to histiocytosis in your local media.

Local News Stations & Local Law Makers

Local News Stations

Share your story and let your local news stations know that September is Histiocytosis Awareness Month! Are you being featured in a story? Send us the link at or share on our social media pages to help others share their stories! Remember to include #histioawareness2019

Local Lawmakers and Representatives

Twitter can be a great way to share your story and awareness month resources with your community, including local and national lawmakers. Here's a public list of US Representatives and their staff who are active on Twitter. Remember to include #histioawareness2019

Press Release

Download this press release template, add your personalized details and send it to your local newspapers, radio stations and TV stations. Email to let us know when a story is published or aired!


Follow the Histiocytosis Association

Share your awareness pictures with us by sharing on social media!

Facebook       Twitter       Instagram       



Other Ways to Get Involved During Awareness Month

Donate Educate

Share with Others

© Histiocytosis Association, Inc.
332 North Broadway, Pitman, New Jersey  08071 USA
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