Social Media and Facebook Live

Social Media is a great tool for spreading awareness about histiocytosis! Get invovled in the conversation and ask your friends to join in too! 

Download the Awareness Ribbon

Change your profile picture on social media to the awareness ribbon. When people ask, share why you're rare and how histiocytosis has affected your life. Every social media outlet has a different profile picture sizing requirement but we've taken the guess work out of it for you! Each file is sized specifically for the social media site named.



Use this hashtag when you post on social media so your posts are a part of the histio social media conversation!



Awareness Pledge

Sign the pledge to show your commitment to raising awareness this September! Pass the link along to friends and family and ask them to commit to sharing about histiocytosis too!

You can find the pledge at

Awareness Month Events

Calendar of Events Coming Soon!

Hosting your own awareness or fundraising event? Let us know about it! Contact

Local Media

Let your local media outlets know that September is Histiocytosis Awareness Month!  The Association has prepared a fill-in-the-blank press release that you can use to help bring attention to histiocytosis in your local media.

Local News Stations & Local Law Makers

Local News Stations

Share your story and let your local news stations know that September is Histiocytosis Awareness Month! Are you being featured in a story? Send us the link at or share on our social media pages to help others share their stories! Remember to include #histioawareness2018

Local Lawmakers and Representatives

Twitter can be a great way to share your story and awareness month resources with your community, including local and national lawmakers. Here's a public list of US Representatives and their staff who are active on Twitter. Remember to include #histioawareness2018

Press Release

Download this press release template, add your personalized details and send it to your local newspapers, radio stations and TV stations. Email to let us know when a story is published or aired!


Follow the Histiocytosis Association

Share your awareness pictures with us by sharing on social media!

Facebook       Twitter       Instagram       Pinterest



Other Ways to Get Involved During Awareness Month

Donate Educate

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