I Know Histio Campaign

How to Participate in the Histio Awareness Month “I Know Histio” Event from September 1 – 30

All throughout Histio Awareness Month, the Histiocytosis Association is looking for as many Warriors and families/friends as possible to participate in raising awareness and engagement outside of the Histio community. All stories are welcome! Post videos, stories, and photos to social media using #IKnowHistio to educate the world about the impact that histiocytic disorders have on patients and families.

The average person has around 300 friends/followers on social media. If we had just a few of them share our stories we could easily reach millions of individuals.

Get Involved in Histiocytosis Awareness Month

Awareness Month Events

September 11-13: Play for a Cure Softball Tournament, Simi Valley, CA  USA (tentative)
September 12: Camp Out for Histio
September 25 - October 5: Ty-Fighters Virtual 5K Challenge

Hosting your own awareness or fundraising event? Let us know about it! Contact outreach@histio.org.


Awareness Month Pledge

Sign the pledge to spread awareness during September! Share with friends and family, asking them to do the same. We've provided resources below and on our Educate page to help you fulfill your pledge. 


Histio Awareness Pledge


We also encourage you to use these official campaign hashtags when posting about tips and tools that help you prepare for a better life with histiocytosis on Facebook, Twitter and Instagram:

Will you join us in raising awareness of histiocytic disorders by informing your friends, family, and the public about histio? There are a few easy ways to raise awareness this September - and all year round.

The Power of Social

1. If you have a Facebook profile, make sure you “like” the Histiocytosis Association page at https://www.facebook.com/histio so that our posts appear in your news feed.
2. Comment and share our posts, pictures, and videos, especially during Histiocytosis Awareness Month.
3. Create your own Facebook posts with links to histio.org to educate your personal networks about histiocytosis. Use our hashtag #IkNOwHISTIO on all your posts for easy tracking. Tell your story, explain why histiocytosis awareness is important to you, and promote Histiocytosis facts. Encourage your Facebook friends to share your posts to multiply your impact.
4. Post photos and share what you’re doing for Histiocytosis Awareness Month on our Facebook page.
5. If you are not on Facebook, now is a good time to join! Create a profile (for free) on facebook.com. Then “friend” people you know (friends, relatives, neighbors) to create your personal network before September begins. Then, when you post about Histiocytosis awareness, you will be sharing information with a large, and growing, group of people.

Download the Awareness Ribbon and Social Media Badges

Change your profile picture or cover photo on social media to the awareness ribbon or a social media badge. When people ask, share why you're rare and how histiocytosis has affected your life. 

Awareness Ribbons



Awareness Badges

I Know A Histio Warrior
I Know A Histio Warrior

Do You Know Histio?
Do You Know Histio


Cover Photo Badges

Click an image below for the full-resolution version, which you can download and then upload as your cover photo on social media.





I Know Histio

Facebook Profile Picture Frames

Prefer to add a frame around your existing Facebook profile picture? We've got you covered!

To add a frame through the Facebook Mobile App:
  • Go to your profile
  • Tap on your circular profile image
  • Tap “Add Frame”
  • Search for our frames in the search box at the top or scroll down to see “Frames From Pages You Like” and look for the ones by the Histiocytosis Association
  • Choose your preferences
  • Click Save
To add a frame through the Facebook website:
  • Go to your profile
  • Click on your circular profile image and "Update" 
  • Click “Add Frame”
  • Search for our frames in the search box at the top or scroll down to see “Frames From Pages You Like” and look for the ones by the Histiocytosis Association
  • Choose your preferences
  • Click "Use as profile picture"
  • A box will open offering you’re the opportunity to donate to the Histiocytosis Association but it is NOT required. To exit without donating, simply click the “x” in the upper right corner of the popup box.
  • Close out of the profile picture/frame window and refresh your Facebook profile to see your updated awareness profile pic!

Sample Social Media Posts & Tweets

Include infographics, photos and videos with your posts/tweets.
Tag celebrities, sports teams & major companies.
Ask to share and retweet (RT).

Facebook & Instagram
September is #HistioAwareness2020…Join the #HistioCommunity and #KnowHistio Visit www.histio.org for more information about histiocytic disorders and join the fight. Please Share.

This September #KnowHistio to support the #HistioCommunity and build awareness about #Histiocytosis. Visit www.histio.org for more information about histiocytic disorders and join the fight. Please Share.

September is #HistioAwareness2020 Month #KnowHistio and educate the world about #Histiocytosis Visit www.histio.org for more information about histiocytic disorders and join the fight. Please Share.

Join the #HistioCommunity during #HistioAwareness2020 Month & #kNOwHistio Visit histio.org for more info

Hey @JTimberlake September is #Histiocytosis Awareness Month do you #kNOwHistio Visit histio.org for more info #HistioCommunity

#HistioCommunity #IkNOwHistio Learn more about #histio and the pursuit of a cure for histiocytic disorders at www.histio.org. Please Share. #HistioCommunity


Use the #IkNOwHistio logo in your social media posts, videos & photos

I Know Histio



You can post videos, photos or written stories. Whether you’re a Warrior, family member or friend – histiocytic disorders impact every patient and family differently and it’s time the world knows about histiocytic disorders! Our goal is to share some of your stories on our Social Media so that we can bring our rare community a little closer.

There is a rolling deadline for story, video and photo submissions, however, to ensure that your story can be shared, all stories should be submitted by no later than September 20, 2020.

There are two easy ways to submit your Know My Histio Story:

1. Record your Know My Histio Story
Download a Sample Video Script here

2. Submit your written story at www.histio.org/KnowMyHistioStory

Once you have submitted your story, please send a photo of your Warrior and your Warrior's name to outreach@histio.org.

We encourage you to share with your network of friends and family as well. September is all about awareness and by educating others on how histio has impacted you, your family, or someone close to you, you are helping spread the word about this rare disease.

We look forward to hearing about your journey!


Tie A Blue Ribbon For Histio

Tie A RibbonThe Tie a Blue Ribbon for Histio campaign is a grassroots initiative that brings Histio awareness into communities across the country. Tie a blue ribbon around your “old” oak tree, mailbox or light post and invite your family, friends and neighbors to do the same. Let’s paint our towns in blue ribbons all throughout the month of September to help spread the word about histiocytic disorders. Order your Blue Ribbons today in our store!


Local Media

Let your local media outlets know that September is Histiocytosis Awareness Month!  The Association has prepared a fill-in-the-blank press release that you can use to help bring attention to histiocytosis in your local media.

Local News Stations & Local Law Makers

Local News Stations

Share your story and let your local news stations know that September is Histiocytosis Awareness Month! Are you being featured in a story? Send us the link at outreach@histio.org or share on our social media pages to help others share their stories! Remember to include #histioawareness2020

Letter to the Editor

Customize this Letter to the Editor template and submit it to your local paper. The purpose of this short letter is to encourage members of your community to raise awareness about histiocytosis in September. You can even add specific events taking place around the community to the letter (i.e. Camp Out for Histio).

Local Lawmakers and Representatives

Twitter can be a great way to share your story and awareness month resources with your community, including local and national lawmakers. Here's a public list of US Representatives and their staff who are active on Twitter. Remember to include #histioawareness2020

Press Release

Download this press release template, add your personalized details and send it to your local newspapers, radio stations and TV stations. Email outreach@histio.org to let us know when a story is published or aired!


Follow the Histiocytosis Association

Share your awareness pictures with us by sharing on social media!

Facebook       Twitter       Instagram       



Other Ways to Get Involved During Awareness Month

Donate Educate

Share with Others

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