Rare Disease Day


Rare Disease Day is February 28

Share Your Rare. Show You Care!

This year marks the 12th international Rare Disease Day! Sponsored in the United States by the National Organization for Rare Disorders (NORD) and internationally by Eurodis. The annual theme is Show Your Rare. Show You Care. Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans – 1 in 10 of us – and more than half are children. Rare Disease Day is observed on the last day of February (the rarest date on the calendar) to underscore the nature of rare diseases and what patients face. It’s an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.

There are numerous resources and activities available to help you raise awareness about Rare Disease Day in your local community. Learn about these resources and many more at rarediseaseday.us and rarediseaseday.org. We've highlighted a few of the activities below.

Rare Disease Day Official Video

 

 

Get involved!

Post a selfie showing your care with social media! Share your photo on your favorite social media using one of this year's hashtags: #ShowYourRare, #MyRare or #RareDiseaseDay.

Learn about the 8 additional ways to get involved!

 

Share your story!

Write about or share a video about your personal rare story to help encourage others through the Tell Your Story gallery.

Share Your Event!

Host & post an event to get involved in the campaign.


Worldwide Events

Learn more about the global initiatives supported through rare disease day.




 
 
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