Histio Patient & Family Educational Webinars and Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Upcoming Educational Virtual Webinars


ECD Webinar
Register Today!

 

We are continually updating our schedule of virtual webinars and will post details here as soon as they are available!
 

 

Previous Webinars
Available to Watch On-Demand


August 2020

Focus on Adult LCH/PLCH 
Guest Speakers: Dr. Omar Abdel-Wahab, Dr. Eli Diamond, Dr. Abdellatif Tazi




July 2020

Focus on HLH
Guest Speakers: Dr. Carl Allen, Dr. Ed Behrens, Dr. Michael Jordan, Dr. Melissa Hines

 

June 2020

Using ECD Consensus Recommendations: Advocate for Your Health
Gues Speakers: Dr. Eli Diamond and Dr. Gaurav Goyal

 

March 2020

Histio Town Hall: COVID-19 and Our Community
Guest Speakers: Dr. Michael Jordan, Dr. Carl Allen, Dr. Ed Behrens, Dr. Eli Diamond, Dr. Hamid Bassiri

 

Spanish Language Webinars - English Subtitles Available

Our friends at the OR ASOCIACIÓN have a series of histio webinars recorded in Spanish with English subtitles available as well.
You can find their videos on their website, here.


Upcoming In-Person Regional MeetingsBenefits of Participating

In-person Regional Meetings are postponed until further notice due to COVID-19. When we are able to safely gather together in person, we will share next steps with you. Registration and additional information will be announced as it is available.


Our in-person regional meetings are temporarily postponed until further notice to protect the safety of all involved.
We look forward to gathering together in-person again in the future!

More regional meetings will be announced in the future! 


Previously Held Meetings

New Jersey Area
Pitman, NJ

Seattle Area
Seattle, WA

Phoenix Area
Phoenix, AZ

Orange County Area
Orange, CA

Philadelphia Area
Philadelphia Historic District, Philadelphia, PA

Chicago Area
Downtown Batavia, IL

Little Rock, Arkansas
Little Rock, AR

Minneapolis, MN
Downtown Minneapolis, MN



 

 

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