Histio Patient & Family Educational Webinars and Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Upcoming Educational Virtual Webinars

Focus on Adult LCH and PLCH

Wednesday, August 19, 2020 at 10:00am ET

Adult LCH and PLCH patients and their families are invited to join us for this free and informative Focus on Adult LCH & PLCH virtual meeting. Our panel of experts will discuss topics specific to adult patients and share the latest progress in treatment and research.
All registered participants will have an opportunity to submit their questions in advance to our panelists.

Our expert panelists include:
Dr. Omar Abdel-Wahab, Hematology-Oncology
Dr. Eli Diamond, Neuro-oncology
Dr. Abdellatif Tazi – Pulmonology
If you are an adult LCH and/or PLCH patient, family member, or caregiver we invite you to register for this free webinar today.
Advanced registration is required, REGISTER NOW!


Previous Webinars
Available to Watch On-Demand

July 2020

Focus on HLH
Guest Speakers: Dr. Carl Allen, Dr. Ed Behrens, Dr. Michael Jordan, Dr. Melissa Hines


June 2020

Using ECD Consensus Recommendations: Advocate for Your Health
Gues Speakers: Dr. Eli Diamond and Dr. Gaurav Goyal


March 2020

Histio Town Hall: COVID-19 and Our Community
Guest Speakers: Dr. Michael Jordan, Dr. Carl Allen, Dr. Ed Behrens, Dr. Eli Diamond, Dr. Hamid Bassiri


Upcoming In-Person Regional MeetingsBenefits of Participating

In-person Regional Meetings are postponed until further notice due to COVID-19. When we are able to safely gather together in person, we will share next steps with you. Registration and additional information will be announced as it is available.

NYC Regional Meeting

New York Area -POSTPONED!

New York, NY

More regional meetings will be announced soon! 

Previously Held Meetings

New Jersey Area
Pitman, NJ

Seattle Area
Seattle, WA

Phoenix Area
Phoenix, AZ

Orange County Area
Orange, CA

Philadelphia Area
Philadelphia Historic District, Philadelphia, PA

Chicago Area
Downtown Batavia, IL

Little Rock, Arkansas
Little Rock, AR

Minneapolis, MN
Downtown Minneapolis, MN



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