Histio Patient & Family Educational Webinars and Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Upcoming Educational Virtual Webinars


Focus on HLH

Focus on HLH Webinar

Thursday, July 14th @ 2:00pm ET

This program allows the HLH community to virtually learn from, connect with, and pose questions to leading HLH experts.
Disease Focus: HLH will be the primary focus of this webinar.
Who should attend: HLH Patients, family members, caregivers, doctors and medical professionals.
Cost: Free!
Guest Speakers: Dr. Carl Allen, Dr. Ed Behrens, Dr. Michael Jordan



Previous Webinars
Available to Watch On-Demand


June 2020

Using ECD Consensus Recommendations: Advocate for Your Health


March 2020

Histio Town Hall: COVID-19 and Our Community


Upcoming In-Person Regional MeetingsBenefits of Participating

In-person Regional Meetings are postponed until further notice due to COVID-19. When we are able to safely gather together in person, we will share next steps with you. Registration and additional information will be announced as it is available.

NYC Regional Meeting

New York Area -POSTPONED!

New York, NY

More regional meetings will be announced soon! 

Previously Held Meetings

New Jersey Area
Pitman, NJ

Seattle Area
Seattle, WA

Phoenix Area
Phoenix, AZ

Orange County Area
Orange, CA

Philadelphia Area
Philadelphia Historic District, Philadelphia, PA

Chicago Area
Downtown Batavia, IL

Little Rock, Arkansas
Little Rock, AR

Minneapolis, MN
Downtown Minneapolis, MN



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