OC Logo

Saturday, October 28, 2017
9:00am - 1:00pm
(Check-In begins at 8:30am)

CHOC Children's
Orange, CA

Patients with histio and their families are welcome to join us for this free
and informative meeting!

Histio patients and their families often feel very alone because the disease is so rare, its effects so varied, and the amount of information so scarce. The Histio Patient & Family Regional Meeting offers a wonderful opportunity to meet, connect and share with other Histio Community families and learn the latest information about these disorders from experts in the treatment of histiocytic disorders.

Nothing compares to the opportunity to meet face-to-face with those who are dealing with challenges similar to your own and then build upon that bond as a result of this shared experience.

Our educational program will include:

  • LCH session:
    • LCH overview
    • Endocrine
    • Skin issues
    • Endocrine issues
    • LCH late effects and resources
  • HLH session:
    • HLH overview
    • SCT for HLH
    • HLH Late effects and resources
  • LCH/HLH Open Forum/Panel discussion

  • Lunch, Prize Raffles and Q&A/networking

Registration Information

Registration is free and includes:

  • Educational sessions
  • Breakfast
  • Networking lunch
  • Prize raffles

Advanced registration is required. Limited seats available.

For questions, please contact Kristen at kn@histio.org or 856-589-6606.


About the Guest Speakers

Dr. Lilibeth L. Torno

Dr. Lien N. Trinh

 Dr. Grace Mucci

 Dr. Brandie Metz


CHOC Children's

Pediatric Oncology

Learn more about Dr. Torno

 CHOC Children's 
Pediatric Endocrinology

Learn more about Dr. Trinh

CHOC Children's

Pediatric Neuropsychology 

Learn more about Dr. Mucci

 CHOC Children's

Pediatric Dermatology

Learn more about Dr. Metz


Local Accommodations  

 Questions about this Regional Meeting? Contact Kristen at kn@histio.org or (856) 589-6606.


This project has been proudly supported by a grant from the Boedecker Foundation and a generous contribution by the Hyundai Cancer Institute





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