Philadelphia Regional Meeting


Saturday, August 19, 2017
9:00am - 1:00pm
(Check-In begins at 8:30am)

The National Constitution Center
525 Arch Street
Philadelphia, PA


Patients with histio and their families are welcome to join us for this free
and informative meeting!


Histio patients and their families often feel very alone because the disease is so rare, its effects so varied, and the amount of information so scarce. The Histio Patient & Family Regional Meeting offers a wonderful opportunity to meet, connect and share with other Histio Community families and learn the latest information about these disorders from experts in the treatment of histiocytic disorders.

Nothing compares to the opportunity to meet face-to-face with those who are dealing with challenges similar to your own and then build upon that bond as a result of this shared experience.

Our educational program will include:

  • LCH session:
    • LCH overview
    • Ocular/orbital bone issues
    • Skin issues
    • Endocrine issues
  • HLH session:
    • HLH overview
    • HLH research/models
  • Session with Social Workers
    • LCH/HLH issues and resources
  • Lunch and Q&A/networking

Registration Information

Registration is free and includes:

  • Mid-morning snack
  • Boxed lunch
  • Validated parking
  • Tickets to the museum

Advanced registration is required. Limited seats available.

Registration is now closed. For questions, please contact Kristen at kn@histio.org or 856-589-6606.

 

 

About the Guest Speaker

Dr. Michael Hogarty

Hogarty


Children's Hospital of Philadelphia
Philadelphia, PA

Learn more about Dr. Hogarty

 

About The National Constitution Center

The National Constitution Center is the only museum dedicated to the US Constitution. It is an engaging, educational and inspiring look at a significant aspect of American history.  You can learn more about the Center on their website, www.constitutioncenter.org.

Your registration includes tickets to the museum and entrance into the limited-time exhibit "Constituting Liberty: From the Declaration to the Bill of Rights."

Parking and Directions

Parking in The National Constitution Center's parking garage is free with validation so be sure to bring your ticket in with you. Enter the garage from Race Street between 5th Street and 6th Street.  Parking tickets must be validated.


 Questions about this Regional Meeting? Contact Kristen Nesensohn at kn@histio.org or (856) 589-6606.


This program has been proudly supported by a grant from: 
Investors Foundation

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