Jim and Leisa Greathouse welcomed a baby boy on August 7, 2005. Samuel Brown Greathouse was diagnosed 10 months later with Langerhans Cell Histiocytosis (LCH). After 16 months of treatment and two preparations toward a bone marrow transplant, Samuel’s body succumbed to the disease on September 17, 2007.
What do grieving parents do in a situation like this, other than ask why? We decided to get involve with the Histiocytosis Association for a number of reasons: 1.) To help pave a smoother path for those that follow, or better yet, so that other children or families never have such a horrid event take place in their life; 2.) To gain a sense of control in an out-of-control situation; 3.) To fulfill a need “to do something”; 4.) To continue to learn and better understand the disease that took our son’s life; and 5.) It‘s a way of coping so that some healing begins to take place.
We are very proud to volunteer for the Histiocytosis Association. They are the most credible and trustworthy organization funding research on an international level for the common good. Their principles and goals align with our motivations to work toward a cure and the prevention of histiocytic disorders.