Live News Reader

Some of the articles presented on this website are accessed through RSS feeds from third-party sources that are not necessarily part of the Histiocytosis Association. While we try to select appropriate feeds to prevent objectionable content from being displayed, the presence of any article does not indicate endorsement or recommendation by the Histiocytosis Association.

If you know of a histio-related article that isn't shown here, please send the article to outreach@histio.org.

Erdheim-Chester disease - Google News
Genes associated with Erdheim-Chester disease also linked to cancer - EurekAlert (press release)

Genes associated with Erdheim-Chester disease also linked to cancer
EurekAlert (press release)
National Human Genome Research Institute (NHGRI) researchers have identified new genes associated with the Erdheim-Chester disease (ECD) and some possible new therapies. Findings on this ultra-rare disease, found in approximately 600 people in the ...


Friday, March 31, 2017 12:16:27 PM

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

Effective BRAF inhibitor vemurafenib therapy in a 2-year-old patient with sequentially diagnosed Langerhans cell ... - Dove Medical Press

Dove Medical Press

Effective BRAF inhibitor vemurafenib therapy in a 2-year-old patient with sequentially diagnosed Langerhans cell ...
Dove Medical Press
Abstract: Erdheim–Chester disease (ECD) is a rare histiocytic disorder, characterized by the xanthomatous infiltration of tissues by CD68-positive and CD1a-/CD100-negative foamy histiocytes. In childhood, ECD is exceptionally rare, and only a dozen ...


Tuesday, January 24, 2017 5:45:39 PM

Is Rheumatology in a Rut? - Medscape

Medscape

Is Rheumatology in a Rut?
Medscape
If you believe the bulletins put out by the American College of Rheumatology, we have pretty much conquered all of the well-known rheumatic conditions and are now simply investigating the really uncommon ones, such as Erdheim-Chester disease or ...


Wednesday, April 05, 2017 10:01:54 AM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

NB woman calling on government to cover cost of life-saving drug - CTV News

CTV News

NB woman calling on government to cover cost of life-saving drug
CTV News
A woman who is fighting a rare form of bone cancer is calling on the New Brunswick government to cover the cost of her medication. Only about 600 cases of Erdheim-Chester Disease have been reported worldwide and Kelly Wilson says she will die without ...


Sunday, September 25, 2016 3:54:06 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

Turkish university to set up a center for rare diseases - Hurriyet Daily News

Hurriyet Daily News

Turkish university to set up a center for rare diseases
Hurriyet Daily News
There are roughly 7 million people in Turkey suffering from rare diseases, most of whom are children, according to the university. The center aims to discover a cure for Aicardi syndrome, clawhand, Donohue syndrome, Erdheim Chester disease, Fabry ...


Thursday, November 03, 2016 7:05:02 AM

Liverpool University Press chair David Attwooll dies - The Bookseller

Liverpool University Press chair David Attwooll dies
The Bookseller
David Attwooll, poet and chair of Liverpool University Press, has died at the age of 67 after succumbing to Erdheim-Chester Disease. Attwooll was born in 1949 and began his career in publishing at Oxford University Press in 1970. By the time Attwooll ...


Wednesday, August 10, 2016 12:33:20 PM

Wife fighting to save others from rare disease after husband's death - KPLC-TV

Wife fighting to save others from rare disease after husband's death
KPLC-TV
There are only 200 registered cases of Erdheim-Chester Disease in the world today. It is the disease that took the life of Gary Brewer, of DeRidder, six years ago. Even in his death, his wife is fighting for others to live. Fond memories of their years ...


Wednesday, November 13, 2013 7:13:48 AM

Share with Others

© Histiocytosis Association, Inc.
332 North Broadway, Pitman, New Jersey  08071 USA
Phone: +1 856-589-6606 | Fax: +1 856-589-6614
| info@histio.org
Tax ID: 22-2827069 | Privacy | DisclaimerContact Us | Site Map
Follow Me on Pinterest   


¿No Habla Inglés? Si usted puede escribirme sus preguntas y preocupaciones a la dirección de correo electrónico: outreach@histio.org. Nosotros podremos responderle tan pronto nos sea possible. Gracias!