The Cycle of Involvement


Our Look

The Association’s logo was inspired by the cycle of working together and focusing on bringing the two communities of patients and practitioners together. To help explain how that is achieved, the Association developed a graphic called “the cycle” that demonstrates how all aspects of the Association’s services work together to support the search for a cure while helping patients fighting these disorders today.




Special thanks to the Boedecker Foundation, the Ruth Church McKay Foundation, as well as several donors who wish to remain anonymous, for their generous support of this project.


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